as shared by the Autistic Self Advocacy Network
ASAN has published a toolkit for advocates, families and administrators on how to ensure that people with disabilities receive Medicaid-funded Home and Community-Based Services in integrated settings that offer full access to the community.
Home and community-based services are an important source of support for many people with disabilities who need help to live in the community. But so far, many of these services have been provided in restrictive or group settings, instead of people’s own homes, communities, or integrated workplaces.
In January, the Centers for Medicare and Medicaid Services (CMS) announced a new rule that may help people get the services they need in truly integrated settings. The new rule sets forth standards for the settings where people receive home and community-based services, including standards for privacy, choice, integration, and access to jobs in the community. Each state must write a five-year plan for how it will change its home and community-based services programs to meet these new standards.
The new rule is the result of several years of conversations between CMS and the disability rights community. In 2011, ASAN worked with Self Advocates Becoming Empowered (SABE) and the National Youth Leadership Network to publish a report on which types of settings people with disabilities believe give them actual, meaningful opportunities to participate in the community.
ASAN’s new toolkit includes:
ASAN’s toolkit on home and community-based services is the third of four toolkits for advocates on health care issues facing the disability community. These toolkits were made possible by funding from the Special Hope Foundation.
We hope that you find our toolkit useful and distribute it widely. Over the course of the next five weeks, ASAN will be holding a webinar series with other disability rights organizations on the new rule and its implications on services. Please send any concerns, feedback, or comments on how you plan to use the toolkit to ASAN’s Director of Public Policy, Samantha Crane, at scrane@autisticadvocacy.org.
Thanks to generous support from:
Autistic Self Advocacy Network | Washington, DC 20035
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