as shared by the ALS Association | Jan 29, 2015
Help Preserve Access to SGDs!
Today Senator David Vitter (R-LA) introduced the Steve Gleason Act, legislation that will help preserve access to speech generating devices (SGDs) and eye tracking technology for people with ALS! U.S. Representative Cathy McMorris Rodgers (R-WA) will be introducing a companion bill in the House. We urge you to contact your Senators and Representative and ask them to cosponsor the Steve Gleason Act! A sample email that you can personalize and send is available in our Advocacy Action Center here.
As you know, the Centers for Medicare and Medicaid Services (CMS) have taken several different actions that deny people with ALS timely access to the SGDs. This legislation would reverse those actions and make sure that people have access to the SGDs they need, when and where they need them. Specifically, the bill would:
While CMS is in the process of revising their coverage policy, these other policies are impacting people with ALS today so it is absolutely critical to address these issues as soon as possible. People with ALS do not have time to wait. Therefore, please contact Congress today!
Thank you to everyone for all that you do to make a difference! Thank you especially to Steve Gleason whose relentless efforts have helped put a public spotlight on these issues and helped to move them forward.
Together, we are making a difference!
For more information, please visit the ALS Association