Disability News Service, Resources, Diversity, Americans with Disabilities Act; Local and National.

Showing posts with label Illinois. Show all posts
Showing posts with label Illinois. Show all posts

Sunday, January 19, 2020

Illinois Benefit Access Program (formerly Circuit Breaker): apply online for benefits

Effective July 1, 2012, Illinois Cares Rx was terminated and the Circuit Breaker Property Tax Relief Grant was eliminated due to the lack of funding.
(this post links updated; verified January 2020 )

The benefits now available are:
  • Seniors Free Transit Ride
  • The Persons with Disabilities Free Transit Ride
  • Secretary of State License Plate Discount
To be determined eligible for these benefits, you must submit a Benefit Access Application on the Internet. Paper applications are not available.
Please note that current processing times to determine eligibility of your Benefits Access Application is 4-6 weeks. 
Once your application is approved you may print a certificate of eligibility to take to your local transit authority or Secretary of State Office. Please wait 10 business days from the date of your approval for your license plate discount to be available. If you requested the ride free benefit, please contact your local public transit system for further information. Your local transit system may have additional requirements in order to obtain the free ride. You can check the website at anytime to determine your application status.
If you have questions or would like to locate a Senior Health Assistance Program (SHAP) site near you for assistance, contact the Senior HelpLine at 1-800-252-8966, 1-888-206-1327 (TTY).

To file your application on the Internet, link to the Benefit Access Application to apply online.

For information or help applying, visit a local office of the following:

Illinois Department of Aging,
Area Agency on Aging in your part of the state.
Call toll-free:
1-800-252-8966 or 1-888-206-1327 (TTY)
Note: Have your Social Security number ready when you call.
Write to:Illinois Department on Aging
1 Natural Resources Way, Suite 100
Springfield, IL 62702

To Apply Online - Click: HERE
# As posted at the Illinois Department on Aging website :
https://www2.illinois.gov/aging/benefitsaccess/pages/default.aspx

UPDATED Q & A:  January 2020

Do I qualify for the Benefit Access Program?

Note: Use of the word spouse also includes a civil union partner.
Apply on the Benefit Access Application if you meet the following requirements:
  1. Age
    • you must be 65 years of age or older by December 31 of the current year; or
    • you must be 16 years of age or older and totally disabled before January 1 of this year.

      NOTE: "Person with a disability" means a person unable to engage in any substantial gainful activity by reason of a medically determinable physical or mental impairment which can be expected to result in death or has lasted or can be expected to last for a continuous period of not less than 12 months. [320 ILCS 25/3.14]
  2. Residency
    • you must live in Illinois at the time you file your application.
  3. Income Limit Eligibility for the License Plate discount and/or Ride Free Transit Card: (Income limit increase effective 1/1/2020.)
    Your total income last year must be less than
    • $33,562 for a 1 person household (yourself only); or
    • $44,533 for a 2 person household (yourself and your spouse, or yourself and one Qualified Additional Resident); or
    • $55,500 for a 3 person household (yourself, your spouse and one Qualified Additional Resident, or yourself and two Qualified Additional Residents).

      NOTE: You must include your spouse's income if married and living together on December 31 of last year. If your spouse died last year, you would file as single and claim only your income. Do NOT include the income of a Qualified Additional Resident.

      *Click here for a list of what is considered income.
      *Get Your Social Security Benefit Verification Online with mySocialSecurity.
  4. ExpirationEligibility is good for two years under the Benefit Access Program. The two-year period starts at the time your application is approved. You may file again beginning 90 days before your eligibility expires.

Wednesday, November 29, 2017

Feds Sue Springfield, Illinois for Discrimination Against Persons with Disabilities

Nov. 28, 2017 -- The Justice Department today filed a lawsuit alleging that the City of Springfield, Illinois, has discriminated against persons with disabilities in violation of the Fair Housing Act. The lawsuit, filed in the U.S. District Court for the Central District of Illinois, alleges that Springfield’s zoning code treats small group homes for persons with disabilities less favorably than similarly-situated housing for people without disabilities. The department’s complaint further alleges that, even if the zoning code were valid, Springfield violated the Fair Housing Act by failing to grant an exception that would allow a three-person group home for individuals with disabilities to continue operating in a residential neighborhood.

“The Fair Housing Act prohibits cities from applying their zoning laws in a manner that discriminates against persons with disabilities,” said Acting Assistant Attorney General John Gore of the Civil Rights Division. “We will continue to vigorously enforce the Fair Housing Act’s prohibition on such discrimination.”

This case arose when the City of Springfield attempted to close a home with three residents with intellectual and physical disabilities because the home violated a 600-foot spacing requirement that applies to community residences for persons with disabilities. That spacing requirement does not apply to homes for up to five unrelated persons without disabilities. The small group home allowed two of the residents to move out of large institutions and live in an integrated community setting.

The lawsuit seeks a court order prohibiting Springfield from enforcing the spacing requirement against this home or similarly-situated homes for persons with disabilities elsewhere in the city. The lawsuit also seeks monetary damages to compensate victims, as well as payment of a civil penalty. A related case challenging Springfield’s spacing requirement was filed by the home’s service provider and one resident. The court in that case, A.D. ex rel. Valencia v. City of Springfield, issued a preliminary injunction against Springfield on Aug. 2, 2017. That ruling is now on appeal to the U.S. Court of Appeals for the Seventh Circuit.

The federal Fair Housing Act prohibits discrimination in housing based on disability, race, color, religion, national origin, sex, and familial status. More information about the Civil Rights Division and the laws it enforces is available at www.justice.gov/crt. Individuals who believe that they may have been victims of housing discrimination can call the Justice Department at 1-800-896-7743, e-mail the Justice Department at fairhousing@usdoj.gov(link sends e-mail), or contact the Department of Housing and Urban Development at 1-800-669-9777 or through its website at https://www.hud.gov/program_offices/fair_housing_equal_opp.

The complaint is an allegation of unlawful conduct. The allegations must still be proven in federal court.

SOURCE: Justice Department press release

Tuesday, November 28, 2017

Chicago Public Schools Asks State of Illinois to Help Reform Special Education Offerings

CHICAGO - Leaders at Chicago Public Schools are asking for the state’s help in reviewing and reforming its special education offerings, which they admit have been subject to “several problems” and are in need of “fundamental changes.”
article by Matt Masterson for WTTW PBS Chicago Tonight | November 27, 2017                               

District officials in a letter to the Illinois State Board of Education last week requested the creation of a new working group of special education experts and advocates to review CPS’ current approach.

“ISBE, as the official education standards-setting body in Illinois, is well-positioned to objectively sort through the myriad of issues and help lead a process that can ultimately improve both the understanding of CPS’ reforms and the actual provision of services to special education children, including the effectiveness of those services,” district CEO Forrest Claypool, Chief Education Officer Janice Jackson and Diverse Learner Chief Elizabeth Keenan wrote in the letter.

The request comes about a month after a WBEZ investigation revealed CPS used outside auditors to limit both its special education funding and services last year. The district has disputed the findings in that report – and continues to do so – but acknowledged in the letter that it “raised legitimate questions for the public.”

“From our perspective, CPS’ special education offerings have been subject to several problems over the years,” the letter states.

“As detailed in our own examination, we strongly believe that the status quo of past years is unacceptable, and that fundamental changes are necessary to ensure equity and the creation of what has been missing – a culture of accountability for the actual academic progress of children with disabilities.”

WBEZ stands by its reporting, in which it claimed one-on-one aides and busing were scaled back through a 2016 overhaul that made it more difficult for diverse learners to get necessary services.

Last year, CPS also implemented an unpopular process that forced schools to file an appeal in order to receive up to 4 percent of their special education funding that was automatically held back by the district. Citing feedback from principals, CPS dropped that policy from this year’s school budgets.

Earlier this month, more than a dozen local organizations including the Chicago Teachers Union, disability advocates Access Living and the Ounce of Prevention Fund sent their own joint letter to ISBE asking it to intervene with CPS’ special education programming and conduct its own investigation of WBEZ’s findings.

“We believe the situation may be so egregious that ISBE may be required following an investigation to appoint an outside expert to facilitate corrective action in relationship to the CPS special education program,” their letter states. “It should be expected that these recommendations may and most likely will include significant changes in CPS special education practices.”

Those groups outlined several issues they have with the district’s existing policies, claiming special and general education services are placed into direct competition for funding, and that special education budget items have been consolidated into larger buckets that “obscure (CPS') allocation of special education funds.”

CPS says it “welcome(s) this conversation,” but also attempted to rebut many of those claims in an appendix to its own letter.

The district says it wants the working group to begin meeting as soon as possible in order to provide final recommendations by next spring.

“Going forward, we know that CPS must be more inclusive and open to ongoing feedback,” the district letter states. “We welcome the opportunity to roll up our sleeves and work alongside those leaders and experts of goodwill who can help us achieve our common goal: to give all children, regardless of their needs, the opportunity to achieve their full potential in school and in life.”

http://chicagotonight.wttw.com/2017/11/27/cps-asks-state-help-reform-special-education-offerings

Tuesday, November 21, 2017

Illinois Home Medical Equipment Vendors Worried About States Medicaid Managed-Care Reboot

A company hired to reboot Illinois’ Medicaid managed-care program plans significant cuts in payments for medical equipment, a move that providers say will hurt low-income patients and make it harder for them to be cared for at home.

Solid Article by Dean Olsen for the State Journal-Register | Nov 18, 2017                                        
IlliniCare Health, a company based in Elk Grove Village that is part of publicly traded Centene Corp., plans cuts of 10 percent to 50 percent in payments next year to vendors who sell equipment such as wheelchairs, portable oxygen, adult diapers, feeding tubes and ventilators.

Those cuts could push some medical providers out of business and persuade others to not participate in IlliniCare’s network, said Kevin Stewart, president of the Great Lakes Home Medical Services Association. He also contended companies that stay in the network might survive by skimping on the quality of supplies or amount of professional support that patients receive.

“Patients are going to be backed up in the hospital, which is going to cost the state more money in the long run,” Stewart said.

Medical equipment providers across the country have already been hit with fee reductions through the federal Medicare program’s “competitive bidding” program, with 45 percent of supplier companies going out of business or leaving Illinois since 2013, said Kam Yuricich, executive director of the Great Lakes association.

John Hoffman, spokesman for the Illinois Department of Healthcare and Family Services, the agency overseeing the managed-care reboot, said IlliniCare and others with state contracts are paid a fixed amount per patient.

Excessive health-care costs will eat into the companies’ profits, so managed-care organizations have a financial incentive to provide good service, Hoffman said.

“The healthier people are, the better it is for the company,” he said.

Officials from IlliniCare and St. Louis-based Centene didn’t return phone calls and emails from The State Journal-Register last week. A spokeswoman from the Illinois Association of Medicaid Health Plans couldn’t be reached for comment.

Testing the waters’
IlliniCare, based in Elk Grove Village near Chicago, is one of seven managed-care organizations (MCOs) that won state contracts for the Jan. 1 launch of the next phase of managed care affecting more than 80 percent, or 2.7 million, of Illinois’ 3.14 million Medicaid recipients.

Durable medical equipment in fiscal 2016 accounted for about $101 million, or one-half of 1 percent, of Illinois’ $20 billion-plus Medicaid program. But vendors said home-based services are essential for patients to avoid hospitalizations and readmissions that can be much more expensive for the state.

Members of the Great Lakes association, which covers Illinois, Indiana and Michigan, worry that IlliniCare’s rate cuts will be picked up as a model by other managed-care organizations in Illinois and in other states where managed care is being used to contain cost increases in the federal-state Medicaid program.

“They’re testing the waters to see whether this works,” Stewart said. “It’s a dangerous test.”

State Sen. David Koehler, D-Peoria, said he introduced Senate Bill 2262 earlier this month to require managed-care organizations pay medical vendors at levels at least equal to the traditional “fee-for-service” rates in response to providers’ concerns.

Koehler said he expects the bill to be considered by the General Assembly early in 2018.

Like many Democrats in the legislature, he is skeptical about the state’s move to managed care for Medicaid recipients, a trend that has been embraced by Gov. Bruce Rauner and other Republicans.

“This whole thing is a mess, and it’s going to cause people who depend on Medicaid to get less service,” Koehler said. “We’ve set this up so MCOs make money by denying services.”

Hoffman said Healthcare and Family Services “is committed to ensuring that health plans offer Medicaid members the services and equipment they are entitled to.”

“Under managed care,” he said, “it is the responsibility of the health plans and providers to negotiate with each other to accomplish this within the framework of contracts, laws and rules overseen by the department.”

Cost savings
IlliniCare billed the state for $1.4 billion in services in the fiscal year that ended June 30, Hoffman said. That money went to pay for health care as well as IlliniCare’s internal costs and profits.

Healthcare and Family Services estimates that the reboot, dubbed HealthChoice Illinois, will lead to annual savings of $200 million to $300 million.

That’s more than $1 billion in total savings during the life of the four-year contract compared with the current managed-care system serving 63 percent of Medicaid recipients, Hoffman said.

However, there is “not a great deal of evidence” that managed care saves money for state Medicaid programs or improves care for beneficiaries, according to Robin Rudowitz, associate director of the nonpartisan Kaiser Family Foundation’s Program on Medicaid and the Uninsured.

By shifting financial risk to for-profit companies and other groups, managed care does give states more predictability when it comes to the cost of Medicaid, she said.

Medicaid costs per recipient have been rising less than costs in the private health insurance system, she said.

Healthcare and Family Services officials say the reboot in Illinois is designed so payment of vendors will be streamlined. The process of receiving and acting on complaints will be streamlined, too, Hoffman said.

The Illinois Academy of Family Physicians is “working in good faith” with the state and MCOs on the reboot, and everyone involved seems interested in seeing the initiative succeed, according to Gordana Krkic, the Bolingbrook-based group’s deputy executive vice president for external affairs.

Worries at home
Such assurances don’t ease the worries of some Illinoisans.

Rebekah Strate, a Murrayville resident, is raising two children with complex medical needs who use equipment to keep them breathing. Strate said she is worried that she will lose her children’s current DME provider, Memorial Home Services, in the reboot.

If 9-year-old McKenzie or 10-year-old Miracle don’t receive equipment and supplies that work best for their conditions, or if replacements aren’t provided right away when supplies run out, the girls can end up in the hospital or worse, Strate said.

McKenzie joined the Strate family as a foster child and since has been adopted. She continues to be covered by Medicaid.

Miracle is still a foster child and is being adopted by the family.

A special provision in the reboot will place all 16,200 children who are in the care of the Illinois Department of Children and Family Services, as well as 23,000 others, including former DCFS wards who have been adopted, into IlliniCare’s managed-care network. The children currently are served in the fee-for-service system, no matter where they live in Illinois.

It’s unclear whether Memorial Home Services, which currently serves the Strate children, will be part of IlliniCare’s network. The contract affecting DCFS clients is expected to begin July 1, 2018.

“Memorial Health System has not finalized contracts yet with any Medicaid managed-care organization, but we are having conversations with most of them, including IlliniCare,” Memorial spokesman Michael Leathers said last week. “Three of the four MCOs have not yet provided contract proposals for our review, but we have been and continue to be in discussions with them.”

Rebekah Strate, 42, a homemaker, and her husband, Jeff, 45, a pharmacy technician, switched from a national medical vendor to Memorial for the children two years ago after a crisis involving McKenzie.

The national company was slow to provide a new $50 nebulizer for McKenzie for breathing treatments after the old one broke, Rebekah Strate said.

She said the delay resulted in breathing problems for McKenzie, who has a tracheostomy and chronic lung disease, and a subsequent stay in the emergency department of Jacksonville’s Passavant Area Hospital. The hospital provided a new nebulizer and apparently billed Medicaid for the equipment and ER visit, she said.

By contrast, a Memorial respiratory therapist has been available immediately by phone, and Memorial has driven equipment and supplies to the family’s Morgan County home, rather than wait for the mail, to make sure the children get good service, Strate said.

There are about 1,000 “medically fragile” children in Illinois, like those in the Strate family, who could be put in jeopardy if IlliniCare skimps on care, said Susan Agrawal, a Chicago resident and founder of a support group for parents of kids in the Medically Fragile and Technology Dependent waiver program.

“Companies hope parents and other caregivers will pick up the slack,” Agrawal said.

DCFS spokesman Neil Skene said IlliniCare has experience serving clients in the child-welfare system in Washington state, Florida and Texas.

DCFS, through careful monitoring, will work so that the fears voiced by Strate and Agrawal about the Medicaid managed-care reboot don’t become reality, Skene said.

“We’re going to make sure it doesn’t adversely affect any child,” he said.

http://www.sj-r.com/news/20171118/home-medical-equipment-vendors-worried-about-medicaid-managed-care-reboot
*****

About Illinois’ Medicaid managed care plan
Medicaid recipients in the Springfield area currently aren’t served by IlliniCare or any other managed-care groups, but that will change in 2018.

Managed-care networks stopped operating for the counties of Sangamon, Menard, Logan, Christian, Macon and Piatt earlier this year after companies and health-care providers withdrew.

As in other parts of the state, many providers complained about payment delays and payment denials.

For the six counties including Sangamon, and the other Illinois counties currently in Medicaid managed care, the reboot begins Jan. 1. Managed-care organizations, or MCOs, are setting up their provider networks, and patients are receiving notices in the mail asking them to choose an MCO or be automatically enrolled in one.

For all other counties, including Morgan, Cass, Macoupin, Montgomery, Mason, Greene and Jersey, the reboot takes effect April 1.

As part of the reboot, the state awarded contracts to seven MCOs, a smaller number than are in the current managed-care system.

Five plans will operate in all 102 counties — IlliniCare, Blue Cross and Blue Shield of Illinois, Meridian Health Plan, Molina Healthcare and Harmony Health Plan. CountyCare and NextLevel will operate only in Cook County.

IlliniCare currently serves 211,000 in the Chicago, Rockford and Quad Cities areas.

Thanksgiving Holiday Shoppers Abusing Disability Parking at Illinois Malls Statewide, Abusers Beware


Once again it's a favorite time of year for many, Thanksgiving. Time to spend time with family, and friends, volunteering is another great way to enjoy the holiday. Another tradition is shopping for the Thanksgiving week deals, and on Black Friday shopping at malls.

Black Friday, marks the unofficial start of the holiday shopping season and one of the busiest shopping days of the year.

In Illinois another tradition is one that we wish was not necessary, but as a advocate for disability issues I enjoy,

The Illinois Secretary of State Police will be for the 11th year in a row visiting shopping malls statewide. They will conduct statewide parking stings targeting individuals illegally parking in spaces reserved for persons with disabilities at shopping malls beginning Black Friday, Nov. 24, 2017.
Drivers caught misusing a placard face a six-month driver’s license suspension and a $600 fine. Repeat violators will face a one-year driver’s license suspension and a $750 fine for a second offense; for third or subsequent offenses, violators will face a $1,000 fine plus a one-year driver’s license revocation. The fine for parking in an accessible parking space without a disability placard or license plates can be up to $350 and using a deceased person’s placard or a fraudulent placard can result in a $2,500 fine and one-year revocation of a driver’s license.
The Illinois Department of Transportation and Illinois State Police are also enforcing the importance of their never-ending “Click It or Ticket” campaign aimed at getting motorists to wear seat belts.

As shared from the Illinois Secretary of State office in a press release.  Currently, 627,281 permanent disability placards and 51,416 disability license plates are registered in Illinois.

Illinois Secretary Of State Jesse White urges individuals to report abuse of parking spaces for people with disabilities by calling 217-785-0309. Callers should be prepared to report placard and license plate numbers as well the as the location of vehicles. People can also report abuse via the Secretary of State’s website at www.cyberdriveillinois.com and complete the Parking Program for Persons with Disabilities Abuse Complaint Form.

article by Jim Watkins, Ability Chicago Info |Nov. 21, 2017

Thursday, November 16, 2017

A Mom With MS Finds Nasty Note After Parking In Handicapped Spot

"You need to think twice before judging someone," the Plainfield mom said. " You have no idea what they've been through."


article by Shannon Antinori,  for Patch Media | Nov 15, 2017                                                     

PLAINFIELD, IL — From all outward appearances, Michele Clarke, 39, looks young and healthy. But 16 years ago, the Plainfield mom was diagnosed with multiple sclerosis. Since then she has had to battle back from flare-ups that have at times left her using a cane or a wheelchair, and even hospitalized for weeks at a time.

"Then there's times when I'm able to go to the gym and build up my strength," she told Patch.

Like many who suffer from "invisible diseases," Clarke said that for many years she was hesitant about using the handicapped placard for fear of being judged.

"It almost gets to the point where I'm afraid to use it," she said, "just because I'm not in a walker or I'm not using a cane ... I may look good on the outside, but on the inside I'm struggling."

Her fears came true on Monday, Clarke said, when she took her 12-year-old daughter to a doctor's office on 127th Street in Plainfield. As she was getting into the car, her daughter handed her a note that had been left on the passenger side windshield.

Clarke said she initially thought she might have been ticketed for forgetting to put her placard in the window, and checked to make sure the placard was there. When she unfolded the piece of paper and began to read, Clarke burst into tears.

"You inconsiderate bitch," a stranger had written. "Parking in a handicap spot when you and your little daughter aren't handicapped. Is the placard for someone else in your family? It certainly isn't for either of the two of you. People who are are truly handicapped need these spots — not you. You are setting a very poor example for your daughter!"

Clarke said her daughter consoled her, telling her it was OK.

"I opened (the note) up and I just had tears rolling down my face after the first nasty words," Clarke said. "I could tell she was hurt for me."

Clarke said she debated about sharing the note on social media, but decided to speak out.

"People do have these invisible diseases, and you get this judgement because you're not using a walker or in a wheelchair," she said. "How do you educate people out there about not judging?"


She said her post was shared on the Facebook pages of two local moms groups, which generated hundreds of comments from others who have experienced similar judgment. Clarke said reading those stories made her feel less alone.

"That was good for me to hear," she said.

Clarke said she wishes the person who left the note would have taken the time to talk to her instead of waiting for her to go inside and leaving an angry message.

"Don't leave a nasty note," she said. "Shame on you for leaving something like that knowing I was with my daughter, who had to see me cry."

Judgement against those with chronic disease — especially for young people who are ill — is so prevalent that the Invisible Disabilities Association is dedicated to combating it. The association defines an invisible disability as "a physical, mental or neurological condition that limits a person's movements, senses, or activities that is invisible to the onlooker."

"Unfortunately," a statement from the association explains, "the very fact that these symptoms are invisible can lead to misunderstandings, false perceptions and judgments."

Last week in Kentucky, a college student undergoing radiation for a brain tumor told CBS News she came out of school to find her car vandalized. An unkind note similar to the one Clarke got was left on it. The note bore a logo that read, "Not really (handicapped parking symbol) just lazy."

Clarke said she said she hopes the person who left the note sees her story.

"I'm not looking for an apology," she said. "But you need to think twice before judging someone ... You don't know what they have. You have no idea what they've been through — who are we to say, 'They look fine, they shouldn't be parking in a handicapped spot?'"

Image courtesy of Michele Clarke
https://patch.com/illinois/plainfield/mom-ms-finds-nasty-note-after-parking-handicapped-spot


Cook County, Illinois to Pay $4.75 Million After Failing to Accommodate Inmate’s Disability

Cook Co. Jail’s placement of inmate with seizure disorder in top bunk contrary to doctor’s order results in severe brain injuries, loss of vision and permanent cognitive disabilities
(Chicago, November 15, 2017) Today, Cook County agreed to pay $4.75 million to compensate Michael Borys for severe injuries he sustained in Cook County Jail.  The payment arises from the settlement of a lawsuit brought under the Americans with Disabilities Act by Equip for Equality and Dvorak Law Offices.
In October 2014, Michael had a seizure and fell from a top bunk in a Cook County Jail dorm resulting in a permanent traumatic brain injury and complete loss of vision in one eye. Michael endured two brain surgeries and a third surgery from skull fracture-related sinus infections.
But Michael should never have been in that top bunk. With a history of a seizure disorder, the County doctor ordered that Michael be placed in a lower bunk.  Tragically, the County did not communicate that mandate to jail staff for two days, by which point Michael was in a coma in the hospital.
Investigation over the course of the case revealed that less than 1% of all medical orders for lower bunks were communicated to correctional staff on a timely basis. Of 1,423 medical lower bunk alerts in 2014 up until the date of Michael’s injury, only 0.1% of the alerts were transferred within an hour, and only 0.6% were transferred within eight hours. The average delay in communication of these health alerts was 13.7 days.
Michael’s Story:  Prior to these events, Michael spent six years battling brain cancer. In 2013, he ended chemotherapy. In 2014, Michael was beginning to get his life back. His seizures, which had previously occurred multiple times daily, were under control and he was working on regaining his driver’s license. He had a girlfriend and was applying for jobs. What happened next would change his life forever.
In October 2014, Michael was arrested on a misdemeanor offense and booked into Cook County Jail. What should have been a short stay turned into a life shattering event. Despite being identified during the intake process as having a seizure disorder and requiring a bottom bunk for safety, Cook County Jail provided Michael with no anti-seizure medication and assigned him a top bunk. On his first night in the bunk, Michael experienced a seizure so violent that he fell out of bed and landed on his head, fracturing his skull.
Later investigation of the Jail’s intake process found that his fall was due to a failure in communication between the doctors administering his health screening and the jail staff who assigned bunks. The investigation discovered there was no standardized medical procedure to keep individuals with seizures safe. In fact, despite knowing his medical background, the Jail did not provide Michael with anti-seizure medication.  While doctors did note that Michael required a bottom bunk, that alert was not communicated to the jail for 2 days. By that time, it was too late.
“This tragic event was entirely avoidable. Under the County’s former system, these inexcusable communication delays were the norm. They were an inevitable and tragic result of an unnecessarily antiquated and inefficient system,” said attorney Richard Dvorak of Dvorak Law Offices, LCC.
“Settlement funds will be placed into a trust so that Michael has the supports he needs throughout his life,” said Equip for Equality Senior Attorney Amanda Antholt. “In addition to fairly compensating Michael for his injuries, we hope this settlement sends a message that Cook County Jail and other correctional facilities must provide accommodations to ensure that inmates with disabilities remain safe.”
###
About Equip for Equality:
Established in 1985, Equip for Equality is a private, nonprofit organization that advances the human and civil rights of children and adults with disabilities in Illinois. The organization is the federally mandated Protection & Advocacy System for the State of Illinois and has broad federal and state statutory powers to carry out its responsibilities. Equip for Equality serves as a legal advocate for people with disabilities, an independent watchdog over the public and private service systems, and advocates for public policy reforms.

About Dvorak Law Offices, LLC:
Dvorak Law Offices, LLC is a successful civil rights firm that has obtained millions of dollars in settlements and verdicts on behalf its clients, and has obtained significant “not guilty” verdicts in serious criminal matters, including the reversal of convictions on appeal. Dvorak Law Offices, LLC, provides the comprehensive criminal defense experience that is needed to defend your rights on all fronts, including the ability to do criminal appeals and ancillary civil rights cases. Led by principal attorney Richard Dvorak, we have the experience, skill and proven track record to defend your rights at any stage of the criminal process
Source: Equip for Equality press release

Tuesday, November 14, 2017

Illinois Residents of State-Licensed Facilities Never Received Increase In Personnel Care Allowance

Advocates for developmentally disabled and mentally ill residents of state-licensed facilities fought for years to win an increase in the small monthly stipend those individuals are allowed to keep for their personal needs.

article by Mark Brown for the Chicago Sun-Times | November 13, 2017                                
They appeared to have prevailed in July with approval of a new state budget and an income tax increase to help pay for it.

Legislators set the new “personal needs allowance” at $60 a month, up from $50 for some individuals and $30 for others.

But more than four months later, some of the would-be recipients say they still aren’t receiving the modest increases owed them and haven’t received a good explanation for why not.

The failure to pay the increase appears to be affecting only residents of nursing homes that care for the mentally ill, not the developmentally disabled, according to the advocates.

Organizers with the community group ONE NorthSide say they have identified at least three long-term care facilities for mentally ill individuals in Chicago where residents say they are still waiting for their raise.

One of those is The Clayton Residential Home in Lincoln Park, where resident Larry Bender Jr. said administrators have put the blame on the state.

Bender said residents of The Clayton received the extra $30 in September, but not in October or November. And he said they are still looking for a retroactive increase for July and August.

The personal needs allowance is intended to be exactly that — the amount of money that individuals residing in certain state licensed facilities are allowed to keep from their Social Security disability checks — of about $735 monthly — to spend on their personal needs. The rest of that money goes directly to pay for their care.

Bender, 46, who has been diagnosed with schizoaffective disorder, said he needs the extra $30 to buy clothing or occasionally something to eat beyond the nursing home’s daily fare.

“Some nice bacon, scrambled eggs . . . a hamburger,” Bender told me wishfully, before mentioning personal hygiene products like soap, deodorant and toothpaste.

The personal needs allowance is basically the only money these folks get to spend in a month, said Sam Wickham, a community leader for ONE Northside’s mental health justice team.

“You need a birthday card, it comes out of that money,” she said.

Wickham, who suffers from severe depression and PTSD herself, said she has never lived in a nursing home-type setting but has been told by friends that the low personal needs allowance was one reason many of them turn to panhandling.

“It was dehumanizing to them,” Wickham said.

I could not get a return call from The Clayton, which I’m told is a decent enough place, so I don’t know where the fault lies.

More than 400 mentally ill individuals live at the three facilities that haven’t paid the increased allowance. Three other facilities surveyed by ONE Northside are paying the new higher amount.

The affected facilities are called Specialized Mental Health Rehabilitation Facilities, which is only worth mentioning because of the acronym, SMHRF, which is pronounced “smurfs” by those in the field.

In an August 29 memo, the Illinois Department of Human Services Director Felicia Norwood notified all the service providers for the developmentally disabled and mentally ill, including the smurfs, that the increase to $60 was effective July 1.

Advocates say they are concerned there appears to be no clear plan for facilities to come up with the back pay.

I realize that the developmentally disabled recipients of this allowance are generally a much more sympathetic group to the public than those suffering from mental illness. When I first went to bat on this subject, it was for their benefit.

But the mentally ill folks in these facilities have some seriously debilitating issues of their own, and they’ve waited long enough.
https://chicago.suntimes.com/chicago-politics/developmentally-disabled-mentally-ill-allowance-increase/

Tuesday, November 7, 2017

ILLINOIS U.S.CONGRESSMAN RUSH CHANGES STANCE TO SUPPORT DISABILITY RIGHTS

Congressman Bobby Rush
After days of protest and pressure from disability rights activists in Chicago and Washington DC, Illinois Congressman Bobby Rush has withdrawn his sponsorship and support from the misleadingly titled, “ADA Education and Reform Act,” also known as HR 620. Disability advocates, activists, and organizations have all come out against the bill.

article by SARA LUTERMAN, for NOS Magazine | Nov. 6, 2017                                     
Scott Nance, a co-organizers of the direct action that ADAPT held outside Congressman Rush’s Chicago office, told NOS Magazine, “I am proud of the Congressman for being open to learning more about our concerns… Bobby Rush has preserved his identity as a leader in protecting the civil rights of every person.”

Rochester ADAPT activist Anita Cameron was pleased with the outcome and highlighted Congressman Rush’s own past activism. “I thank Congressman Rush for listening to his constituents and colleagues and coming off of HR 620… I hope that he hearkened back to his Black Panther roots.” Cameron also had praise for her fellow activists. “Thanks to Chicago ADAPT for their hard work to get the congressman to rescind his support of [HR 620].”

NOS Magazine reached out to Congressman Rush’s office, but they have declined to comment about the decision or the reasoning behind it. Congressman Rush also did not give a reason when he withdrew his cosponsorship on the floor. His office had released two previous press releases on the topic, but both explicitly stated that he would remain a cosponsor.

Scott Nance attributes the withdrawal to, “the combined efforts of advocacy from Centers for Independent Living and the direct action of ADAPT.” We also asked Scott Nance which HR 620 cosponsors ADAPT might target next. Nance responded, “[Congressman] Bill Foster, BIG TIME.” It is still unclear what action ADAPT will take, as they keep a tight lid on details about upcoming protests. NOS Magazine will continue to follow the story as it develops.
http://nosmag.org/congressman-bobby-rush-stays-true-to-activist-roots-hr620/

Friday, November 3, 2017

State of Illinois Grants To Help People with Sight Disabilities Hear The News

People with sight disabilities in Illinois could soon gain access to news radio technology.

To provide if qualified, the 295,000 Illinoisans who have vision issues with equipment that will allow them to keep up to date with news. Sideband receivers will allow these people to tune into radio stations where volunteers ready daily news from newspapers in the state. Special-frequency radios are required to hear these broadcasts.

Some Illinoisans already have access to the program, which can be accessed using a password-protected Internet stream. Click here for more information about the grant.

Directory of Illinois Radio Information Service Organizations
Augustana Public Radio Information Service (APRIS)
Augustana College
639 38th St.
Rock Island, IL 61201
309−794−7500
Augustana Public Radio Information Service Website

Chicagoland Radio Information Service (CRIS Radio)
1850 West Roosevelt Rd.
Chicago, IL 60608-1298
312−666−1331
Chicagoland Radio Information Service Website

Illinois Radio Reader (WILL)
University of Illinois
300 N. Goodwin Ave.
Urbana, IL 61801
217−333−7300
Illinois Radio Reader (WILL) Website

Lewis and Clark Radio Information Service (WLCA)
Lewis and Clark Community College
5800 Godfrey Rd.
Godfrey, IL 62035
618−468−4940
WLCA Website

Minds Eye Information Service
9541 Church Circle Drive
Belleville, IL 62223
618−394−6442
Minds Eye Information Service Website

Northern Illinois Radio Information Service (NIRIS) Studios
DeKalb Office
801 N. First St.
DeKalb, IL 60115
815−753−9000
Northern Illinois Radio Information Service Website

Southern Illinois Radio Information Service (WSIU)
Southern Illinois University
1003 South Oakland
SIUC Mailcode 6531
Carbondale, IL 62901
618−453−2808
Southern Illinois Radio Information Service Website
Tri-States Audio Information (WIUM/WIUW)
Western Illinois University
504 University Services Building
Macomb, IL 61455
309−298−2403
Tri-States Audio Information (WIUM/WIUW) Website

Wabash Valley College Radio Information Service
Wabash Valley College
2200 College Dr.
Mt. Carmel, IL 62863
618−262−8641
Wabash Valley College Radio Information Service Website

WCBU Radio Information Service
Bradley University
1501 W. Bradley Ave.
Peoria IL 61625
309−677−3585
WCBU Radio Information Service

WUIS-WIPA Radio Information Service
University of Illinois at Springfield
P.O. Box 19243
Springfield, IL 62703-5407
217−206−6404
WUIS-WIPA Radio Information Service Website

Illinois Service Dog Advocates Warn Against Passing Pets Off As Working Service Animals

Judy Peltier of Gurnee walks with her Seeing Eye dog, Janet, several times a week at the Independence Grove forest Preserve, where dogs are not allowed. (Frank Abderholden / Lake County News-Sun)
Article by Frank Abderholden for the Lake County News-Sun | Nov. 2, 2017                           

ILLINOIS - Freedom and Independence could be two good dog names, but for Judy Peltier of Gurnee, her Seeing Eye dog Janet literally gives Peltier her freedom and independence.

She wanted to make a point in the wake of October's blindness awareness month that service dogs serve a special need and people need to be aware of that, whether she is taking to task those "fake" service dog people or giving special thanks to all the people she crosses paths with while exercising three days a week at Independence Grove Forest Preserve in Libertyville, where dogs are not allowed as a rule.

"What's really great is that other fitness enthusiasts there understand, respect and support us as a guide-dog team," Peltier said.

"They don't interfere or obstruct," she said of her fellow walkers and runners at the forest preserve.

Peltier began going blind at age 5 with an inherited disease called retinitis pigmentosa, through which she lost her night vision first, then her day vision. Eventually, what sight she had became tunnel vision.

"All I see are silhouettes and no details," she said.

She got her first guide dog in 1999 and is now on her fourth, all of which were trained at The Seeing Eye in Morristown, N.J.

"You work with the dog for seven to eight years, and then you give them a good retirement," she said, which can mean adopting them out. "But I'm lucky I have a sighted husband (Tom) who loves to take my retired dogs," she said with a laugh.

"A guide dog offers enhanced mobility as opposed to using a white cane. It's just a choice to those who are legally blind," she said.

While she can see some shapes, her dog helps her navigate as it stops at crosswalks and for any change in the elevation, a step down or up, or something blocking her path entirely.

"Even doorways. They are trained to stop you when a car is pulling out of the driveway. These dogs take their final test in midtown Manhattan. These dogs are trained to save both our lives," she said.

"The mall is a great training ground," she said, which is where she walks in the winter. "The dog has to get you around strollers, kids running in and out of stores, kiosks with those little squeaky things," she said.

What she wants to remind people is that they should not act like she has a regular dog. In fact, she was reluctant to reveal Janet's name for that very reason.

"That's very critical. Sometimes people will start talking to the dog and distracting the dog. But, these dogs are to be ignored because they are working, and people need to know how to act," Peltier said.

And dog owners who try to pass their dogs off as service dogs prompts real scorn from Peltier, who has experienced unruly pets inside stores in the past.

"They were clearly not working dogs. They were barking and lunging at my dog," she said. "A service dog is trained to ignore other dogs. When people do that, it disrupts the work of the legitimate dog."

At The Seeing Eye training facility, dogs are taken to train stations, "so they feel the ground move, and (are) around traffic and loud noises so they become used to it," she said.

President and CEO, James A. Kutsch Jr. of The Seeing Eye dog training school, first established in 1929, says Peltier is right about giving a service dog space. Their organization kicked off a campaign recently to remind people not to disturb service dogs or let their dogs distract service dogs.
"Any poorly trained or poorly controlled dog can interfere with the effective use of service animals, and can jeopardize the safety of both the disabled handler and the service dog," said Kutsch, who has had Seeing Eye trained dogs since 1970.
He believes incidents where a dog barks and lunges in a business as putting the business owner in a bad situation, because people can use social media against the business.

"Businesses are put in a tough place and the general public needs to be educated. There needs to be an awareness," he said.

According to the Americans with Disabilities Act (ADA), business owners can ask a disruptive dog and owner to leave an establishment.

"If the general public understands that, then social media can be positive and the business gets approval and not condemnation from the public," Kutch said. "Businesses and the general public need to be more aware that they are not required to tolerate bad behavior from any animal, be it a fake or a legitimate service animal."

The only thing a business owner can ask a person with a service dog is, "What task is the dog trained to do to mitigate the disability?" he said.

Some politicians want to be able to certify dogs, but he is against that idea.

"There are many proponents of that solution. People with disabilities struggle enough that this just becomes an additional burden," he said. It's like every time you go to pull out of your driveway, you're asked for your driver's license, he added.

"A well-behaved dog doesn't bother me, whether it's a legitimate service dog or not," Kutsch said, but he's not encouraging people to try and pass off the family pet as a service dog.

"I personally think it's always been a problem," but media and legislative attention seems to "backfire," he said. "Look how easy it is. The general public says 'Why didn't I think of that.' And, as a result, we are seeing more of it," he said.

In fact, he warns against buying some package readily sold on the internet from $21.99 to $125 that offers training and an official looking harness, because the ADA does not require it.

"Everyone needs to remember the equipment doesn't make it legitimate. There is no way to tell by breed or size (they use three-quarter yellow Labrador and a quarter golden retriever for their dogs, which are specially trained for four months) to know if it's a service animal or not," Kutsch said.

"A dog for the blind is obvious, but dogs are trained to detect low blood sugar in diabetics and the onset of an epileptic seizure, and that can't be easily identified by the passerby," he said.

It boils down to good behavior can't be faked, and most family pets are out of their element, so his general message to anyone thinking about faking it is not to.
"Don't do it, because your dog is probably not prepared for the stress and it will misbehave. Don't do it, because you give a black eye to legitimate dogs and users who are trying to go about their daily life," he said.
Annie Thompson, spokeswoman for the Illinois Office of the Attorney General, said the ADA defines a service animal as any dog individually trained to provide assistance to a person with a disability, regardless of whether the animal is certified by a particular entity or wearing identifying markers.

"The Disability Rights Bureau enforces state and federal laws to ensure people with disabilities have equal access to their communities, and that includes educating businesses and the public about the importance of accommodating people who use service animals," she said in an email.

Individuals can contact the Disability Rights Bureau to file complaints or obtain additional information about service animals and other disability laws at 312-814-5684 in Chicago or 217-524-2660 in Springfield. The attorney general's link for ADA is at http://www.ag.state.il.us/rights/servanimals.html.

Kutsch offered this link for their effort to encourage the general public not to distract service dogs at https://www.guidedogatwork.org/. He also offered this link to the U.S. Department of Justice Civil Rights Division, Disability Rights Section, at http://www.ada.gov/regs2010/service_animal_qa.html.

Peltier said the Chicago-based Equip For Equality website is also helpful for people with disabilities at https://www.equipforequality.org/.

She recently recently did the five-mile Mackinaw Bridge walk in Michigan, where she and Janet carved through 25,000 participants without a hitch. No pet dogs were allowed.

"With hand on harness, this six-footed team has many more miles to roam and bridges to cross with freedom and independence," she said.

http://www.chicagotribune.com/suburbs/lake-county-news-sun/news/ct-lns-service-dogs-serious-work-st-1031-20171105-story.html

Thursday, November 2, 2017

Roman Catholic Priest Charged with Sexual Assault of Developmental Disabled Center Resident in Illinois

Richard Jacklin, 65, booking photo via Illinois State Police.
 (Illinois State Police)
by the Associated Press | Nov. 2, 2017                                                                                            
ILLINOIS - Bond has been set at $1 million for a Roman Catholic priest accused of sexually assaulting a resident of a developmental center outside Chicago.

The Rev. Richard Jacklin was arrested by Illinois State Police on Tuesday for the alleged assault on the resident at Shapiro Developmental Center in Kankakee.

Kankakee County State's Attorney Jim Rowe on Thursday told the judge a nurse walked in on Jacklin performing a sex act on a 39-year-old man. The alleged victim has been a patient at Shapiro since 2010 and is paralyzed and has an intellectual disability.

The 65-year-old Jacklin has been charged with criminal sexual assault by force and sexual misconduct of a person with a disability.

The Diocese of Joliet says Jacklin was ordained June 2, 1984, and has been assigned to Sacred Heart Catholic Church in Goodrich since 2005.

Illinois Interagency Committee for Employees with Disabilities (ICED) 2017 Outstanding Employee of the Year John Eckert

Springfield, IL – For John Eckert, working as senior policy advisor at the Illinois Department on Aging isn’t so much a job, as it is a calling – a vocation. The Illinois Interagency Committee for Employees with Disabilities in October named John Eckert its 2017 Outstanding Employee of the Year. Jean Bohnhoff, director of the Department on Aging, and Mr. Eckert’s nominator said, “For John, it’s about helping people. Whether it’s ensuring an individual can transition to a community with access to needed housing, or making sure a person has the supplies necessary to set up a new, independent living apartment, John’s always there. It’s not about the titles for him, but a mission of serving others. That’s why he’s our outstanding employee – and now, the committee’s as well.”

Mr. Eckert, with a Master’s in Rehabilitation Administration and Services from Southern Illinois University at Carbondale, maintains a primary focus on rebalancing the long-term care system to ensure that individuals with disabilities and the elderly have every opportunity to live independently in their communities. This commitment to mission is reflected in the long list of social initiatives that bear his indelible imprint of leadership.

He has long-served as the Department on Aging’s leader for the Federal Money Follows the Person Demonstration Program, a Medicaid improvement project aimed at better serving the elderly and those with disabilities. He is the chair of Illinois’ Inter-Agency Long-Term Services and Support rebalancing project for Medicaid, and serves as the agency’s co-lead for Older Americans Services Advisory Committee. Mr. Eckert is also co-lead for both the implementation of the Federal Person-Centered Planning Requirements and the Nursing Facility Deflection Project.
 
Mr. Eckert has long been considered a dedicated advocate for individuals with disabilities as well as the elderly, and he works tirelessly to serve them through policy and inter-agency collaboration. He is seen by his Department on Aging colleagues and peers across all other statewide human services agencies as a subject matter expert and patient, thoughtful mentor to others. This award and its recognition validates the views of his colleagues, clients, and the communities he serves.

About the Illinois Department on Aging
The mission of the Illinois Department on Aging is to serve and advocate for older Illinoisans and their caregivers by administering quality and culturally appropriate programs that promote partnerships and encourage independence, dignity, and quality of life.

Monday, October 30, 2017

Illinois Parents Accused of Leaving Disabled Teen Locked in Filthy Room for 2 Years

Prosecutors say Charles Hopkins III, 59, and his longtime girlfriend, Marinda Y. Hicks, 38,  locked their mentally impaired daughter inside a squalid, waste-covered bedroom for at least two years.

Chicago, IL - The south suburban parents of nine children locked their adult daughter, who has severe cognitive disabilities, inside a squalid, waste-covered bedroom for at least two years, prosecutors said Saturday.

article by William Lee | Chicago Tribune | Oct. 28, 2017                                                           
Cook County Judge Sophia Atcherson on Saturday ordered Charles Hopkins III, 59, and his longtime girlfriend, Marinda Y. Hicks, 38, released without posting bail and both with electronic monitoring on several neglect-related charges, including endangerment of a child, criminal neglect of a person with a disability and abuse or neglect of a physically disabled person by a caregiver.

Both were scheduled to appear before another judge at the Markham Courthouse next week.

Hopkins and Hicks have nine children together, ranging in age from 1 to 20, prosecutors said at the Leighton Criminal Court Building. Since at least 2015, both parents used a locking gate to kept their 18-year-old daughter confined to a bedroom in the home they shared with their other children in the 1800 block of West Vermont Street in Blue Island.

The young woman, who has the mental capacity of a small child, was not allowed to leave the room, authorities said. Her family installed a portable toilet inside her room, but only emptied it every four or five days, said Assistant State’s Attorney Kim Pressling.

The daughter, who cannot care for or clean herself, was fed through the bars of the gate and slept on a mattress covered in human waste and menstrual blood, according to authorities.

The windows to the young woman’s bedroom were barred and a board covered the bars, according to court documents. The couple’s home lacked hot water and food, and the home’s roof was caving in.

Previously, the key to the daughter’s bedroom was held by the woman’s parents and one other person, authorities said. But in May, Hopkins changed the lock to the gate and carried the only key with him to work, meaning no one in the home could let the woman out when he wasn’t there, Pressling said.

During the hearing, Hopkins’ private attorney Elliot Zinger asked for a signature bond, citing the lack of a criminal record for his client, adding that there was “a lot more to the story” than what prosecutors claimed.

The judge allowed for their release, but barred contact between Hopkins and Hicks with children except for their own minor children, as long as they were in compliance with the Illinois Department of Children and Family Services.

A DCFS representative wasn’t immediately available Saturday night.

http://www.chicagotribune.com/news/local/breaking/ct-disabled-adult-daughtger-neglect-20171028-story.html

Wednesday, October 18, 2017

Illinois Gov. Rauner (R) Cuts Human Services Programs Statewide in 20180State Budget

Illinois - Gov. Bruce Rauner’s administration has identified millions of dollars of cuts it will make to the new state budget, including to human services, agriculture programs and transportation.

article by Doug Finke for The State-Journal Register | Oct. 17, 2017                                   
Even then, the administration says the budget remains $1.5 billion out of balance, which will require further reductions.

The cuts were outlined in materials provided to the four legislative caucuses by Rauner’s budget office.

Rep. Greg Harris, D-Chicago, the lead budget negotiator for House Democrats, said the cuts included $89 million to various human services programs, including autism services, after school programming and immigrant and refugee services.
“He has the authority, I understand that,” Harris said. “If you look at the human service programs, it is the same vulnerable seniors, people with disabilities and children that he has consistently targeted year after year despite the legislature continually trying to restore the funds. Those are his regular targets.”
Rauner spokeswoman Patty Schuh said the governor was forced to make reductions.

“The governor received a budget $1.7 billion out of balance and has to take action where possible to begin reducing that structural imbalance,” she said.

Sen. Heather Steans, D-Chicago, who chairs one of the Senate appropriations committees, said she hasn’t had a chance to fully review all of the cuts and fully determine their effect. She said her initial review is that the administration did not gut programs that have traditionally been targeted in the administration’s budget proposals.
"I believe they worked to preserve those greatly, and that’s about 95 percent (funding level),” Steans said. “I certainly appreciate they’re not just going in and cutting those willy-nilly. ... They may have made some reductions, but primarily they were keeping all of those programs and not just going to zero on them.”
In addition to the human services cuts, the administration outlined $85 million in cuts to the Illinois Department of Transportation, $41 million to the Department of Commerce and Economic Opportunity and $21 million to the Department of Agriculture.

Harris said cuts were made to soil and water conservation districts, cooperative extension, county fair assistance, business development and tourism grants. He also said there are 5 percent reductions to para-transit and senior citizen reduced fares, as well as cuts to operations at IDOT.

Although the legislature approved the budget in early July, it only authorizes the governor to spend money on programs up to a certain limit.

“The legislature appropriates and the governor spends,” Steans said. “It is certainly within their legal authority not to spend everything we appropriate.”

Rauner has repeatedly said the budget approved by lawmakers contains a $1.7 billion deficit, despite an income tax increase passed to help cover state expenses. In an Economic and Fiscal Policy Report filed with the General Assembly last week, the administration said it had identified “approximately $150 million in general funds deficit spending reductions to decrease the deficit to $1.5 billion.”

Rauner has said he wants to work with lawmakers to find additional savings to bring the budget into balance. House Speaker Michael Madigan, D-Chicago, sent a letter to Rauner saying he had appointed a working group headed by Harris to work with the administration on budget issues.

“There’s been no response to that that I know of,” Harris said.
http://www.sj-r.com/news/20171017/rauner-cuts-human-services-other-area-in-state-budget

Monday, October 16, 2017

Illinois Legislators Rated on Support for Medicaid Home and Community Based Services for Developmental Disabilities

   Springfield, Illinois - September, 2016 - Illinois Parents of Adults with Developmental Disabilities (IPADD) has released its first scorecard for Illinois legislators, believing it to be the first disability-specific legislative report published in the state.

The scorecard, titled ICLR (Illinois Community Living Report), analyzed ten bills from the 2016 Spring Session of the Illinois 99th General Assembly. Bills were chosen for their potential to help or hinder Illinois citizens with developmental disabilities access more included lives in their homes and communities. Rep. Carol Ammons, Rep. Will Guzzardi, and Rep. Elaine Nekritz achieved a perfect score of 100% on the scorecard. All three representatives have received IPADD’s “Community Living Advocate Award.”
“We are grateful to Reps. Ammons, Guzzardi, and Nekritz for having the courage to support good policy which directly impacts the lives of Illinois citizens with developmental disabilities,” said Deb Hamilton, IPADD’s Legislative Affairs Director. Hamilton added: “The scorecard also reveals a disappointing level of engagement by many of the top leaders, including Governor Rauner and Speaker Madigan, who each scored only 50% on the report. This is nothing short of negligence and that type of policy neglect will no longer go unscrutinized by the public.”
IPADD believes "every person with a developmental disability, supported appropriately, can live a safe, meaningful, and connected life in their home community. The group outlines three key goals for Illinois government, which include:

1."Commit immediately to raising the state fiscal investment in Home and Community-Based Services (HCBS) from our current rank of 46th in the nation...

2.Shorten, and eventually eliminate, the PUNS (Prioritization for Urgency of Need for Services) waiting list...

3.Make equitable rate adjustments for community services across regions, settings, and HCBS waivers..."

Download Illinois Community Living Report (PDF)
Read article on NPR Illinois and listen to interview with Deb Hamilton.
IPADD was co-founded in 2006 by Laurie Jerue and Ellen Garber Bronfeld, both mothers of adults with a developmental disability. IPADD has since grown to more than 1,500 members. From the beginning, the organization has been grounded in the philosophy that every person with a developmental disability can lead safe, meaningful, and connected lives in their community.
source: IPADD press release