Disability News Service, Resources, Diversity, Americans with Disabilities Act; Local and National.

Wednesday, September 4, 2013

Special Education Town Hall: Chicago OCT.19

as shared from Access Living, we will update info as available....

Dear Access Living friends and allies,
 
SAVE THE DATE!
 
On October 19, Access Living will be the site of a Special Education Town Hall. In conjunction with our partners Equip for Equality, the Family Support Network, the Family Resource Center on Disability and the Illinois Lifespan Project of the Arc, we want to offer families of CPS students with disabilities an opportunity to come and let us know what is going on with their child’s education.
 
Given the many changes in CPS this year, we want to be sure that families have an opportunity to air concerns so that we can all try to find the best possible solutions for students with disabilities.
 
Remember, there are about 46,000 students with disabilities in CPS. Each one deserves a free and appropriate public education (FAPE).
 
Further details will be coming soon so keep your eyes peeled! To ensure that you receive a copy of the final details, please email Rod Estvan at restvan@accessliving.org.
 
Amber Smock
Director of Advocacy, Access Living
###


Where: Access Living
             Address: 115 W Chicago Ave, Chicago, IL 60654
             Phone:(312) 640-2100  
WHEN: October 19, 2013
CONTACT: email Rod Estvan at restvan@accessliving.org


 

Diagnosed with polio at a young age, Dergin Tokmak inspires on dance floors around the world - video

Dergin Tokmak (“Stix”) had polio as a kid and suffered partial paralysis in his legs. That hasn’t stopped him from being inspired on dance floors around the world. 



YouTube Uploaded on Feb 25, 2012 by stixsteps

For more Dergin Tokmak (“Stix”) YouTube videos: CLICK HERE

Submit Comments on the Proposed Fair Housing Rule : Help Affirmatively Further Fair Housing!

as shared by National Low Income Housing Coalition...

Take Action



Submit Comments on the Proposed Fair Housing Rule
 
In mid-July, HUD released the long-awaited proposed rule intended to improve the obligation to affirmatively further fair housing (AFFH). Advocates are urged to submit comments, which are due in two weeks onSeptember 17.
 
What is affirmatively furthering fair housing?
 
The Fair Housing Act of 1968 prohibits housing discrimination on the basis of race, color, religion, sex, familial status, national origin, or handicap – the “protected classes” of people. The Act also requires HUD’s program participants to take steps to actively overcome historic patterns of segregation and promote fair housing choice.
 
New Proposed Regulations in 2013
 
On July 19, HUD published a proposed rule intended to improve regulations for states, local jurisdictions, and public housing agencies that must comply with the Fair Housing Act’s requirement that they affirmatively further fair housing.
Comments on the proposed AFFH rule are due September 17, 2013. Advocates are urged to submit comments supporting HUD’s proposed rule while also offering suggestions for making further improvements.
 
Learn more about AFFH and access other resources at www.nlihc.org/issues/AFFH.
 
Questions? Contact Ed Gramlich, 202.662.1530 x 314, ed@nlihc.org.

Thank you for your support!

Footer

Accessible Transportation and Emergency Preparedness Planning : Sign-up for the September 18th webinar

as shared from Easter Seals Project ACTION...



Sign-up for the September 18th webinar:  
  
  
Deadline to register: September 16th  
  
Planning accessible transportation for people with disabilities in emergency situations can be complex and challenging. Communities must consider many aspects regarding both how to conduct the planning-including outreach, involving people with disabilities in the process, and data collection-as well as topics to discuss, such as evacuation procedures and accessible shelter locations.

In this webinar, presenters will discuss these challenges and the role of accessible transportation in emergency preparedness planning. Speakers will include Julie Bommelman, transit administrator, City of Fargo, North Dakota; Kevin Shanley, senior emergency management coordinator, City of Chicago Office of Emergency Management & Communications; and Carol Wright, senior director, Easter Seals Accessible Transportation Programs. To ask the presenters questions in advance or for general inquiries about the event, send an email to webinars@easterseals.com and put "Emergency Preparedness" in the subject lineor call 800-659-6428.

For more information on accessible transportation and emergency preparedness planning, download ESPA's latest Update information brief, "Emergency Preparedness: Planning for Transportation Before, During, and After a Crisis"Photo credit: Patsy Lynch/FEMA  

Tuesday, September 3, 2013

Illinois Low Income Home Energy Assistance Program (LIHEAP) : Seniors and Disabled can apply Sept 1

For many Illinois households, energy costs place a severe and continuing stress on a family’s budget.  In some instances, the household is forced to make painful decisions regarding which bills to pay and which necessities to survive without.  The Low Income Home Energy Assistance Program (LIHEAP) is designed to help eligible low income households pay for winter energy service. 

PY 2014 Application Schedule

Beginning September 1, 2013   Seniors, People with Disabilities
Beginning October 1, 2013       Households with children under age 5
Beginning November 1, 2013    All other eligible households

Percentage of Income Payment Plan - Available to Customers of Ameren Illinois, ComEd, Nicor Gas or Peoples Gas/North Shore GasLIHEAP clients with the listed utility providers have the option of choosing between the traditional LIHEAP Direct Vendor Payment (DVP) plan or the new Percentage of Income Payment Plan (PIPP). Under this program the eligible clients will pay a percentage of their income, receive a monthly benefit towards their utility bill, and lower their overdue bills for every on-time payment they make by the bill due date.

Plan Ahead and Bring Proper Documentation
Do not forget to bring all required documentation at that time including:
  • Proof of gross income from all household members for the 30-day period prior to the application date.
  • A copy of current heat and electric bills issued within the last 30 days (if energy directly paid for).
  • A copy of rental agreement (if renting) showing that utilities are included, the monthly rental amount and landlord contact information.
  • Proof of Social Security numbers for all household members.
  • Proof that household received TANF or other benefits, such as Medical Eligibility or SNAP, if receiving assistance from the Illinois Department of Human Services.
Am I Eligible?
If your household’s combined income for the 30 days prior to application is at or below 150% of the federal poverty level as shown in the chart below, you may be eligible to receive assistance.  If you rent, and your heat and/or electric is included in the rent, your rent must be greater than 30% of your income in order to be eligible to receive assistance.
Family Size30 Day IncomeAnnual Income
1  $1,436$17,235
$1,939 $23,265
$2,441 $29,295
$2,944 $35,325
$3,446  $41,355
$3,949 $47,385
$4,451  $53,415
$4,954 $59,445
                                                    
How Do I Apply?
Contact your local Community Action Agency to make an appointment to apply for LIHEAP.  Locate the Community Action Agency nearest you.

For the City of Chicago, and Cook County apply thru Community and Economic Development Association of Cook County, Incorporated




Draft 2014 LIHEAP State Plan and Program Integrity Supplement---NOW AVAILABLE FOR REVIEW AND COMMENTS

For additional assistance, please feel free to call the
Energy Assistance Hotline at (877) 411-9276
To report LIHEAP fraud or abuse: DCEO, Office of Energy Assistance, Attn: Fraud Unit, 500 E. Monroe, Springfield, IL 62701

TAKE ACTION NOW! Medicare Rule Change Could Negatively Affect Users of Assistive Technology, Durable Medical Equipment: Sept 2013

as shared from our colleagues at Access Living; we at Ability Chicago completely support this view...

TAKE ACTION! Medicare Rule Change Could Negatively Affect Users of Assistive Technology, Durable Medical Equipment
Speaking Devices, Power Chairs Among Items Affected

For 8 million people with disabilities who use Medicare, access to the appropriate technology and devices are critical. Over half of this group acquired their disability before age 54. Assistive technology (AT) and durable medical equipment (DME) allow most folks to live in the community rather than in nursing facilities or institutions.  One example of AT is speaking devices; an example of DME is power wheelchairs.

The Center for Medicaid and Medicare Services is proposing a new rule that would require monthly rental, not purchase, of these kinds of equipment.  Much of this equipment has to be individually tailored, which makes rental rather ridiculous.   Ultrasonic osteogenesis simulators are also affected by this proposed change.

We urgently need the disability community to take action by contacting your United States Senators and Representatives at the Take Action link at the top of this message.  Our members of Congress need to contact CMS chief Marilyn Tavenner to urge her not to go forward with the rule as proposed, but to revisit the entire system of how Medicare pays for AT and DME.

Access Living, along with a number of other organizations such as the United Spinal Cord Injury Association, is submitting comments today on the proposed rule. But we need people’s action to make Congress aware of this problem.

TAKE ACTION ASAP by using the “Take Action” link at the top of this page (if you are reading this in an email) or scroll down for the quick letter template (if you are reading this on our website).   Fill out the form, and feel free to personalize the letter.  When you are done, click Send and the letter will automatically go to your members of Congress. Let’s go advocates!

Monday, September 2, 2013

Illinois Family Caregiver Support Program : resource, info...

  Illinois Family Caregiver Support Program  

diagonal image
The Illinois Department on Aging and Aging Network have and will continue to focus on helping caregivers who reside throughout the United States. One in four households (25%) takes on the role of providing care to older family members and friends. Family caregivers serve as a critical component in providing the long term care needs of older adults. Eighty-five percent (85%) of all long term care services are provided by unpaid caregivers. If the work of these family caregivers had to be replaced by paid home care staff, the estimated cost would be $45 to $94 billion per year.
Caregiver Support Program...helping family and friends care for seniors
The caregiving role often evolves over time. The caregiver takes on more and more responsibilities, not realizing how involved he or she has become. For others, caregiving comes in a time of crisis, unplanned and unexpected. A sudden illness can turn an independent older person into someone who needs assistance on a daily basis.
Help is available whether you live in Illinois or another state. This web site is designed to give you information without overwhelming you, and to steer you to the places that have been set up to help you directly.

Section Links

Support for Family Caregivers
Who are caregivers?
What does a caregiver do?
Are you a grandparent raising grandchildren?
About the program
Who is eligible for services?
Where can I find out about services near me?
Limited-English speaking assistance
Caregiver Resource Centers in Illinois
Caregiver Web resources
Ask us a question

Some files on this site are in Adobe Acrobat PDF format. You may download a FREE copy of Adobe Acrobat by clicking the logo below.
Get Adobe Acrobat Reader Free!

Access Adobe's
PDF Accessibility Tools
The above links for Adobe Acrobat will open a new browser window.

World Chicago hosts Brazilian athletes with disabilities




 ; ABC7 Chicago : Disability Issues : Sept 1, 2013

This summer, some of Chicago's athletes with disabilities played hosts to athletes with disabilities from Brazil as part of World Chicago, a U.S. Dept. of State-sponsored organization.
This is the first time for a sports and disabilities program to be funded by the state department.

Twenty-six athletes and their coach visited Chicago for 10 days to experience accessibility in Chicago.

"They're doing a mix of sport and advocacy training so they can go back and be advocates for disability rights in Brazil," said Peggy Partenoff, executive director, World Chicago. "We wrote a grant to because Chicago did not get the bid for the Olympics, but Rio did, which was too bad, but when Rio did, we said let's still have a dialogue with Rio about the Olympics, about youth athletes. Chicago is a city that has a great disability rights community."

Visitors were joined by Chicago's athletes with disabilities as they explored the city and participated in different sports, like sled hockey.

"They don't have a lot of hockey or ice skating in Brazil. It's more summer outdoor," Partenoff said.
Tayna, 18, is a swimmer, although she had fun learning sled hockey. She loved the city

"It is a beautiful city, very accessible, warm, at least this time of the year. I am enjoying very much the city," she said.

Lucus is also 18. He plays basketball and is a big fan of Michael Jordan.
"I like a lot Michael Jordan because his life story and his lessons -- even your basketball is great," said Lucas.
Sport Coordinator Sileno is impressed with Chicago's sport programs.

"It's amazing, the sport, because people with disabilities, with a good arm, can practice, and the people who cannot use their upper body can be helped with the one who can't. So, it is very important the sport to be included for people with disabilities," Sileno said.

For more information, visit www.worldchicago.org.

(Copyright ©2013 WLS-TV/DT. All Rights Reserved.)

Trouble for the Social Security Disability Insurance fund, the result could be grim

Unless Congress acts, the Social Security Disability Insurance fund will run dry in three years and cause benefit cuts for nearly 11 million Americans. Critics say the disability insurance dampens people's incentive to work. 

By Margaret PriceCorrespondent /  /The Christian Science Monitor/ September 1, 2013
NEW YORK
As a disabled man, Matthew Rini of Harwood Heights, Ill., struggles to survive on sporadic earnings as a tour guide in Chicago and about $400 a month from the Social Security Disability Insurance(SSDI) program. His live-in companion, Maria, helps with household expenses.
But even as Mr. Rini grapples with a deteriorating ability to work, he and millions of others face another potential woe: a looming insolvency of the SSDI trust fund, whose reserves are set to run dry in three years. Unless Congress acts, disability benefits would then be cut 20 percent.
For some SSDI recipients, the result could be grim, requiring cutbacks in food purchases or other daily necessities. But as the 2016 deadline draws near, remedies for fixing SSDI are stirring up debate, complicating the path toward a resolution and highlighting the polarized views among Americans about government-run social programs. Politically, it's a trial run for the debate over shoring up Social Security, whose combined funds are expected to be depleted in 2033.
The SSDI program helps people who cannot work because of a medical condition. Nearly 11 million Americans, including almost 8.8 million disabled workers, plus their children and spouses, receive benefits. Disabled workers get an average $1,129.51 per month. Some conservatives deem the SSDI program bloated and want to undo at least some of a 1984 reform that effectively expanded the kind of disabilities covered by the program. Advocates are pushing to fortify the SSDI's finances, but they're divided over how to make that happen.
Some SSDI advocates think Congress should tackle the big picture, making the overall Social Security program solvent for the long term. Many others see too little time to reach that goal by 2016 and urge a shorter-term fix: allocating a slightly larger portion of Social Security's payroll tax revenues to its disability fund and a slightly lowered portion to its Old Age and Survivors Insurance (OASI) retirement fund. That maneuver could keep both funds solvent until 2033.
That fix has been made before. The OASI and SSDI are the two Social Security programs with dedicated trust funds financed mainly by payroll taxes. (In contrast, Social Security's Supplemental Security Income program for low-income elderly, blind, or disabled people is funded out of general tax revenues.)
"Reallocation, which Congress has done 11 times in the past, is a short-term solution that gives Congress time to fix the Social Security system," says Lisa Ekman, federal policy director of Health & Disability Advocates, a nonprofit national group based in Chicago.
Not everyone agrees. "Just reallocating assets pushes the solvency problem down the road," says Charles Blahous, a public trustee of the Social Security Trust Funds. "If we can't get comprehensive reform by 2016, it suggests Congress won't be able to fix the current structure at any point."
If the SSDI trust fund dwindles to nothing – and Congress doesn't act – benefits would have to be paid out of current Social Security taxes, presumably causing a benefit cut. A similar situation awaits the combined trust funds if their surplus runs out in 2033. If lawmakers delay action on fixing Social Security, they'll face stark last-minute choices: cutting benefits or sharply boosting Social Security taxes. If Congress is unwilling to take one of those steps, they might change Social Security's current funding structure and subsidize benefits through the government's general fund. In that case, Social Security would have to compete for funding with other programs, making benefits more subject to change, says Mr. Blahous, who is also a senior research fellow at the Mercatus Center at George Mason University in Fairfax, Va.
Conservatives and other critics say many SSDI recipients have ill-defined problems, such as back pain or mental disorders, a direct result of 1984's loosened eligibility requirements. Moreover, the program caps the amount recipients can earn not including SSDI at $1,040 per month, which can discourage working and getting off the program. "With SSDI, there really isn't a lot of incentive to pursue work," says Pamela Villarreal, senior fellow at the National Center for Policy Analysis, a nonprofit policy research organization in Dallas.
Various ideas have sprung up to tighten or "retool" SSDI. Among them: a private disability insurance plan, proposed by Mark Duggan of the University of Pennsylvania's Wharton School and David Autor of the Massachusetts Institute of Technology. Their plan would require employers to buy private disability insurance and allow them to charge employees for as much as 40 percent of the cost of their coverage. Disabled workers could get as many as two years of benefits from the private plan, after which they could transition to SSDI. However, that idea would include incentives to encourage staffers with limited ability to work because of a disability or other issue to stay employed, if possible.
That and other plans have yet to evolve into congressional bills. For now, there's just the rising debate over SSDI's looming insolvency – and its possible spillover effect on the public. "Lack of bipartisan agreement over SSDI creates a lot of uncertainty and risk" for workers and disabled people, says Blahous. "Without action, SSDI's benefits will be cut 20 percent."

Friday, August 30, 2013

National Ovarian Cancer Awareness Month - September 2013

PRESS RELEASE : August 30, 2013
U.S. Department of Health & Human Services

A statement by HHS Secretary Kathleen Sebelius
This year, thousands of American women – our mothers, grandmothers, aunts, daughters, and friends – will die from ovarian cancer. During September, we observe National Ovarian Cancer Awareness Month to recognize those who have died and recommit ourselves to helping the women who are fighting for their health.
Every year, more than 20,000 women in the United States are diagnosed with ovarian cancer, which is the fifth leading cause of cancer death for women and accounts for more than 14,000 deaths a year.
The administration advances scientific research to improve prevention, diagnosis and treatment. When ovarian cancer is found in its early stages, treatment is most effective, but, there is currently no proven method to screen for ovarian cancer in women.
That is why awareness is key to women’s survival. Ovarian cancer often does have signs and symptoms, so it is important to pay attention to your body –to be aware-- and know what is normal for you.  If you have vaginal bleeding that is not normal for you, see a doctor right away. Also see your health care provider if you have any of the other signs that are not normal for you, such as pain in the pelvic or abdominal area or bloating, for two weeks or longer.
Know your risk factors. All women are at risk for ovarian cancer, but older women are more likely to get the disease than younger women.  There are some factors that may increase your risk, including if you have genetic mutations calledBRCA1 or BRCA2, have had certain cancers, breast,uterine,or have never given birth or have had trouble getting pregnant.
Having any of these symptoms or factors does not mean you have or will get ovarian cancer. But you should speak with your health care professional about your risk and whether you need genetic counseling and further examination.
The Affordable Care Act is making health care more accessible and providing important protections for women. Insurers must cover –at no out-of-pocket cost -- an annual well-woman visit, which is a good time for women to discuss their concerns about ovarian cancer with their health care provider. The law also guarantees coverage for genetic counseling and testing for certain women at high risk for ovarian cancer.
Women who are enrolled in Medicare part B can discuss any concerns at the annual wellness visit, which is available without part B coinsurance or satisfying the deductible. We also know that women-- and men -- without insurance are less likely to get the primary health care that they need to get healthy and to catch serious conditions like ovarian cancer in their early and more treatable stage. The good news is for millions of Americans who are uninsured or under-insured, new options for affordable, quality health insurance are around the corner.
In just a few weeks, every state will have an online Health Insurance Marketplace where people can find a plan that fits their budget and needs. Open enrollment starts October 1 for coverage that begins as soon as January 1, 2014.  You can find information and updates at HealthCare.gov – and the Spanish-language version at CuidadoDeSalud.gov. Sign up now at either site for a personal account to begin the process.
Also, in 2014, the health law makes it illegal to deny coverage or charge more if a woman has ovarian cancer or other pre-existing condition.
Remember: Being aware of what’s normal for our bodies and having access to quality health care are vital weapons in the fight against ovarian cancer.
Learn more about the risks and symptoms of ovarian and other gynecologic cancers.
See the National Cancer Institute’s What You Need to Know About Ovarian Cancer booklet and check out the Centers for Disease Control and Prevention’s Inside Knowledge: Get the Facts About Gynecologic Cancer campaign and read survivors’ personal stories.

###
http://www.hhs.gov/news/press/2013pres/08/20130830a.html

Note: All HHS press releases, fact sheets and other news materials are available at http://www.hhs.gov/news.
Like HHS on Facebook exit disclaimer icon, follow HHS on Twitter @HHSgov exit disclaimer icon, and sign up for HHS Email Updates.
Follow HHS Secretary Kathleen Sebelius on Twitter @Sebelius exit disclaimer icon.
Last revised: August 30, 2013